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VonHippelLindau news

Residents urge county to stick with NCHC

Wausau Daily Herald - Aug 23, 2016
Erich Moan, a Mount View resident with a genetic disease called Von Hippel-Lindau syndrome, feels at home there. It's a revelation he had recently while his mother worked on a puzzle and he played the video game Halo with his mouth, because he doesn't ...

Breakfast benefit, Sinatra talk and more events are on tap

Ventura County Star - Aug 22, 2016
There will be an all you can eat pancake breakfast from 8-10 a.m. Saturday to benefit the VHL Alliance at Applebee's, 291 W. Ventura Blvd. VHL stands for a rare genetic disease called von Hippel Lindau. The alliance funds cancer research and provides ...

What is Von Hippel-Lindau Syndrome?

News-Medical.net - Jan 18, 2016
Von Hippel-Lindau syndrome (VHL) is a genetic disorder that is characterized by the growth of benign and malignancy tumors in the central nervous system (CNS) and viscera. This may include many different types of tumors, such haemangioblastomas, renal ...

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Green Awareness Bracelets 100 Piece Lot Silicone Jelly Wristband Cancer Cause


The Official Patient's Sourcebook on Von Hippel-Lindau Disease: A Revised and Up


Green IMPERECT Cancer Bracelets 100 Piece Lot Silicone Jelly Wristband Cause


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Von Hippel Lindau videos

Medical Marvels - Von Hippel-Lindau Disease

NewYork-Presbyterian neurosurgeon Michael B Sisti, M.D., and patient Manuel Greco discuss Manuel's case. Manuel has Von Hippel-Lindau disease, a rare ...

An Introduction to Von Hippel LIndau disease

A Comcast Newsmaker interview with Jeannie McCoy, board member of the VHL Family Alliance, about her experience and her family's experience with Von ...

Von Hippel Lindau Disease

Overview of Von Hippel Lindau Disease.

Neurofibromatosis, Tuberous Sclerosis & Von Hippel Lindau, Acoustic Neuroma Lisch Nodule NF1 NF2

ERRATA: Less than half of all VHL is caused by a deletion of the VHL gene. There are a number of different mutations to the gene that cause the disorder.

La Enfermedad de Von Hippel Lindau

La Enfermedad de Von Hippel Lindau.