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Recurrent Glioblastoma Multiforme (GBM) Treatment Market is Expected to Gain Popularity Across the Globe

Medgadget (blog) - Jan 30, 2017
In addition, neurofibromatosis, tuberous sclerosis, von-hippel-lindau disease, Li-fraumeni syndrome and turcot syndrome are some of the genetic disorders that are associated with increasing incidences of gliomas. Glioblastoma multiforme is a World ...

What is Von Hippel-Lindau Syndrome?

News-Medical.net - Jan 18, 2016
Von Hippel-Lindau syndrome (VHL) is a genetic disorder that is characterized by the growth of benign and malignancy tumors in the central nervous system (CNS) and viscera. This may include many different types of tumors, such haemangioblastomas, renalĀ ...

Suppression of von Hippel-Lindau Protein in Fibroblasts Protects against Bleomycin-Induced Pulmonary Fibrosis

AJRCMB (subscription) - Oct 22, 2015
We have reported that von Hippel-Lindau protein (pVHL) expression is elevated in human and mouse fibrotic lungs and that overexpression of pVHL stimulates fibroblast proliferation. We sought to determine whether loss of pVHL in fibroblasts prevents ...

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Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


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Von Hippel Lindau books

All In Her Head: Based on A True Story

by: Cari P
Based on a True Story: The Tragedy of a young mom who felt hopeless as she spent years going from doctor to doctor only to be told it was "all in her head," and how her tragedy would change the medical lives of her family. A Von Hippel Lindau story. VHL. Educational, Emotional, Inspirational. A good book to read for anyone dealing with tumors or a genetic medical rare-disease.
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Von Hippel-Lindau Syndrome - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers

by: Philip M. Parker
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Von Hippel-Lindau syndrome is indexed in search engines, such as www.
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VHL Handbook Kids' Edition: A handbook for parents and kids living with von Hippel-Lindau

by: Melissa Kruger
This handbook was written as a guide and a reference book for parents and children of all ages living with von Hippel-Lindau (VHL), a hereditary cancer syndrome that increases one's risk of having tumors of the eye, brain, spinal cord, kidneys, pancreas, and adrenal glands. It was specifically designed for parents to read to their children so they could answer any questions their children might have about VHL. It can also be used as a starting point for discussions about how VHL has affected the family.
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The VHL Handbook: What You Need to Know about VHL

by: The VHL Family Alliance
A reference handbook for people with von Hippel-Lindau, their families and support personnel. Updated 2012. The VHL Handbook is a compact summary of information essential to managing the health of a person with von Hippel-Lindau disease (VHL). Designed to be read by patients, their physicians and members of their health care teams, it explains how VHL occurs, how to monitor and test for possible medical issues, and common treatment options to be considered. VHL is a cancer syndrome, in which tumors may occur in one or more of six different organ systems.
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Von Hippel Lindau videos

Medical Marvels - Von Hippel-Lindau Disease

NewYork-Presbyterian neurosurgeon Michael B Sisti, M.D., and patient Manuel Greco discuss Manuel's case. Manuel has Von Hippel-Lindau disease, a rare ...

Von Hippel Lindau Disease

Overview of Von Hippel Lindau Disease.

An Introduction to Von Hippel LIndau disease

A Comcast Newsmaker interview with Jeannie McCoy, board member of the VHL Family Alliance, about her experience and her family's experience with Von ...

La Enfermedad de Von Hippel Lindau

La Enfermedad de Von Hippel Lindau.

Von Hippel-Lindau