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VonHippelLindau news

Peloton Therapeutics Initiates Patient Dosing in Phase 2 Study of PT2385 for von Hippel-Lindau Disease-Associated ...

Business Wire (press release) - May 11, 2017
DALLAS--(BUSINESS WIRE)--Peloton Therapeutics, Inc., a drug discovery and development company focused on advancing novel small molecule cancer therapies, announced today initiation of patient dosing in a Phase 2 study of PT2385, the Company's ...

Managing Renal Cell Carcinoma Associated Paraneoplastic Syndrome with Nephron-sparing Surgery in a Patient with ...

UroToday - May 11, 2017
A patient with germline von Hippel-Lindau (VHL) gene alteration and history of multiple tumors present with classical paraneoplastic syndrome (PNS) associated with renal cell carcinoma (RCC). She underwent open nephron sparing surgery with resolution ...

5 outdoorsy things to do this weekend

Ventura County Star - May 11, 2017
The finish line will reward you with a breakfast burrito, chocolate-dipped strawberries, cupcakes and more. There's also a chance to win prizes in the raffle — bib holders are automatically registered. The race raises money for Von Hippel-Lindau, a ...

Von Hippel Lindau - premium items on eBay

Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


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Von Hippel Lindau books

All In Her Head: Based on A True Story

by: Cari P
Based on a True Story: The Tragedy of a young mom who felt hopeless as she spent years going from doctor to doctor only to be told it was "all in her head," and how her tragedy would change the medical lives of her family. A Von Hippel Lindau story. VHL. Educational, Emotional, Inspirational. A good book to read for anyone dealing with tumors or a genetic medical rare-disease.
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Von Hippel-Lindau Syndrome - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers

by: Philip M. Parker
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with Von Hippel-Lindau syndrome is indexed in search engines, such as www.
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VHL Handbook Kids' Edition: A handbook for parents and kids living with von Hippel-Lindau

by: Melissa Kruger
This handbook was written as a guide and a reference book for parents and children of all ages living with von Hippel-Lindau (VHL), a hereditary cancer syndrome that increases one's risk of having tumors of the eye, brain, spinal cord, kidneys, pancreas, and adrenal glands. It was specifically designed for parents to read to their children so they could answer any questions their children might have about VHL. It can also be used as a starting point for discussions about how VHL has affected the family.
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VHL Patient Vignettes: Personal stories, thoughts, and tips submitted by people dealing with the diagnosis of von Hippel-Lindau

by: unknown

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Von Hippel Lindau videos

Von Hippel Lindau Disease

Overview of Von Hippel Lindau Disease.

Von Hippel-Lindau


An Introduction to Von Hippel LIndau disease

A Comcast Newsmaker interview with Jeannie McCoy, board member of the VHL Family Alliance, about her experience and her family's experience with Von ...

Medical Marvels - Von Hippel-Lindau Disease

NewYork-Presbyterian neurosurgeon Michael B Sisti, M.D., and patient Manuel Greco discuss Manuel's case. Manuel has Von Hippel-Lindau disease, a rare ...

La Enfermedad de Von Hippel Lindau

La Enfermedad de Von Hippel Lindau.