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VonHippelLindau news

Telomere Length May Predict Renal Cell Carcinoma Risk in Patients with VHL

Cancer Therapy Advisor - Aug 23, 2017
There are estimated to be 13 distinct hereditary renal cell carcinoma (RCC) syndromes, each of which is associated with specific germline mutations, including von Hippel-Lindau disease (VHL).1 VHL is a rare autosomal dominant cancer syndrome occurring ...

Young couple hit by double tragedy as they were diagnosed with brain tumours just weeks apart

Mirror.co.uk - Aug 30, 2017
The couple, who live together and have been together for nine years , rallied around each other while they were receiving treatment. Francesca, who works as a buyer for F&F, suffers from Von Hippel-Lindau syndrome, which can cause malignant and benign ...

Limited time left to book tickets for Biggleswade brain tumour couple's fundraising ball

Comet 24 - Sep 8, 2017
Francesca, who was born in Stevenage, has Von Hippel-Lindau syndrome, which predisposes her to a variety of malignant and benign tumours, and has had nine benign tumours removed since she was 15. Dean, who grew up in Royston, was diagnosed ...

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Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


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Von Hippel Lindau Disease

Overview of Von Hippel Lindau Disease.

An Introduction to Von Hippel LIndau disease

A Comcast Newsmaker interview with Jeannie McCoy, board member of the VHL Family Alliance, about her experience and her family's experience with Von ...

Medical Marvels - Von Hippel-Lindau Disease

NewYork-Presbyterian neurosurgeon Michael B Sisti, M.D., and patient Manuel Greco discuss Manuel's case. Manuel has Von Hippel-Lindau disease, a rare ...

Neurofibromatosis, Tuberous Sclerosis & Von Hippel Lindau, Acoustic Neuroma Lisch Nodule NF1 NF2

ERRATA: Less than half of all VHL is caused by a deletion of the VHL gene. There are a number of different mutations to the gene that cause the disorder.