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VonHippelLindau news

Von Hippel-Lindau Syndrome Screening and Diagnosis


News-Medical.net - May 22, 2018
Von Hippel-Lindau (VHL) syndrome is a rare genetic disorder inherited in an autosomal dominant manner. The disease is characterized by hemangioblastomas or slow-growing vascular tumors of the brain, spinal cord, and retina; pancreatic neuroendocrine ...
 

Model organs let surgeon rehearse 'impossible' surgery


Futurity: Research News - Jun 7, 2018
Building an exact replica of an organ, such as a kidney with tumors, allows surgeons to practice complex procedures long before the patient goes under the knife. Anthony Camnetar remembers the first time he heard that he had von Hippel-Lindau syndrome, ...
 

Practice Make Perfect -- Fake Organs Guide the Way for 'Impossible' Cancer Surgery


University of Rochester (press release) (blog) - Jun 7, 2018
The gene responsible for suppressing tumors is flawed in von Hippel-Lindau syndrome, resulting in uncontrolled cell grow and division. This, in turn, can give rise to tumors in multiple organs which typically begin to appear in early adulthood. A few ...
 

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Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


 

Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


 

Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


 

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An Introduction to Von Hippel LIndau disease


A Comcast Newsmaker interview with Jeannie McCoy, board member of the VHL Family Alliance, about her experience and her family's experience with Von ...
 

Von Hippel Lindau Disease


Overview of Von Hippel Lindau Disease.
 

Medical Marvels - Von Hippel-Lindau Disease


NewYork-Presbyterian neurosurgeon Michael B Sisti, M.D., and patient Manuel Greco discuss Manuel's case. Manuel has Von Hippel-Lindau disease, a rare ...
 

Een kijkje in mijn leven - Von Hippel-Lindau België


Neem een kijkje in mijn leven. Iedere dag ga ik de strijd aan met mijn aandoening Von Hippel-Lindau. Een werk van Gillis Cornelis.