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Von Hippel-Lindau Syndrome Global Clinical Trials Review, H2, 2016


NewsMaker (press release) - Nov 26, 2016
GlobalData's clinical trial report, “Von Hippel-Lindau Syndrome Global Clinical Trials Review, H2, 2016" provides an overview of Von Hippel-Lindau Syndrome clinical trials scenario. This report provides top line data relating to the clinical trials on ...
 

Kidney Tumor in a von Hippel-Lindau (VHL) Patient With Intensely Increased Activity on 68Ga-DOTA-TATE PET/CT.


UroToday - Oct 29, 2016
Renal and pancreatic cysts and tumors are the most common visceral manifestations of von Hippel-Lindau (VHL) disease, a heritable multisystem cancer syndrome characterized by development of a variety of malignant and benign tumors. We report a case ...
 

Sunitinib for the treatment of benign and malignant neoplasms from von Hippel-Lindau disease: A single-arm ...


UroToday - Nov 21, 2016
Von Hippel-Lindau (VHL) disease is an autosomal dominant hereditary cancer syndrome that predisposes affected individuals to the development of multiple benign and malignant tumors. One of the main manifestations of VHL is renal cell carcinoma (RCC).
 

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Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


 

Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


 

Von Hippel Lindau Disease Awareness Ribbon Vinyl Wall Decal or Car Sticker


 

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Von Hippel Lindau books

VHL Handbook Kids' Edition: A handbook for parents and kids living with von Hippel-Lindau


by: Melissa Kruger
This handbook was written as a guide and a reference book for parents and children of all ages living with von Hippel-Lindau (VHL), a hereditary cancer syndrome that increases one's risk of having tumors of the eye, brain, spinal cord, kidneys, pancreas, and adrenal glands. It was specifically designed for parents to read to their children so they could answer any questions their children might have about VHL. It can also be used as a starting point for discussions about how VHL has affected the family.
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The VHL Handbook: What You Need to Know About VHL


by: the VHL Alliance
A reference handbook for people with von Hippel-Lindau, their families, and their medical team. Updated 2015. The VHL Handbook is a summary of information essential to managing the health of a person with von Hippel-Lindau disease (VHL). Designed to be read by patients, their physicians and members of their health care teams, it explains how VHL occurs, how to monitor and test for possible medical issues, and common treatment options to be considered. VHL is a cancer syndrome, in which tumors may occur in one or more of six different organ systems.
>> More info on Amazon

The VHL Handbook: What You Need to Know about VHL


by: The VHL Family Alliance
A reference handbook for people with von Hippel-Lindau, their families and support personnel. Updated 2012. The VHL Handbook is a compact summary of information essential to managing the health of a person with von Hippel-Lindau disease (VHL). Designed to be read by patients, their physicians and members of their health care teams, it explains how VHL occurs, how to monitor and test for possible medical issues, and common treatment options to be considered. VHL is a cancer syndrome, in which tumors may occur in one or more of six different organ systems.
>> More info on Amazon

VHL Patient Vignettes: Personal stories, thoughts, and tips submitted by people dealing with the diagnosis of von Hippel-Lindau


by: unknown

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Von Hippel Lindau videos

Medical Marvels - Von Hippel-Lindau Disease


NewYork-Presbyterian neurosurgeon Michael B Sisti, M.D., and patient Manuel Greco discuss Manuel's case. Manuel has Von Hippel-Lindau disease, a rare ...
 

Von Hippel Lindau Disease


Overview of Von Hippel Lindau Disease.
 

An Introduction to Von Hippel LIndau disease


A Comcast Newsmaker interview with Jeannie McCoy, board member of the VHL Family Alliance, about her experience and her family's experience with Von ...
 

La Enfermedad de Von Hippel Lindau


La Enfermedad de Von Hippel Lindau.
 

A VHL Story (Von Hippel Lindau Disease)


A short documentary shot and edited on an iPad mini that tells the story of one family's journey with VHL, a genetic form of cancer.